Considerations for Returning Individual Genomic Results from Population-Based Surveys: Focus on the National Health and Nutrition Examination Survey

Proceedings of a Workshop

von Division of Behavioral and Social Sciences and Education, Committee On National Statistics, National Academies of Sciences Engineering and Medicine

210 Seiten, Taschenbuch

Kurzbeschreibung des Verlags

Population surveys collect information from participants by asking questions. Today, many surveys also collect biologic specimens that can be used to analyze a respondents DNA and other biomarkers. The National Health and Nutrition Examination Survey (NHANES) is a population survey that also administers a physical examination, collects biospecimens, and reports some test results (e.g., cholesterol levels) to the participant. While visiting communities large and small throughout the country, NHANES collects health and nutrition data from a representative sample of individuals through in-person interviews and health examinations that take place at special mobile examination centers. The examination component consists of medical, dental, and physiological examinations, as well as laboratory tests. On December 2, 7, and 8, 2022, a workshop was convened to focus on anticipated future collections of genomic data by NHANES. The 2022 workshop explored ethical considerations and current practices for returning genomic information from active research and population surveys. This Proceedings of a Workshop summarizes the presentations and discussions at the workshop.

• ISBN: 9780309704892
• Sprache: Englisch
• Erscheinungsdatum: 05.11.2023
• Größe: 229 x 152 mm
• Verlag: National Academies Press
• Textauswahl von: Celeste Stone